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    Durch Ihre Spende an den Verein DEBRA Austria - Hilfe für die Schmetterlingskinder - unterstützen Sie die medizinische Versorgung, Forschung und Weiterbildung im EB-Haus Austria. 

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Spendenkonto: IBAN: AT02 2011 1800 8018 1100, BIC: GIBAATWWXXX DEBRA Austria, Am Heumarkt 27/1, 1030 Wien

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Literaturnachweise

Allgemeine Grundlagen

Fine JD, Hintner H. (eds.) Life with Epidermolysis Bullosa (EB): Etiology, Diagnosis, Multidisciplinary Care and Therapy, Springer, Wien (2009).

Murrell DF (ed.) Epidermolysis Bullosa: Part I – Pathogenesis and Clinical Features, Dermatol. Clin. 28 (1), W.B. Saunders Elsevier, Philadelphia (2010).

Murrell DF (ed.) Epidermolysis Bullosa: Part II – Diagnosis and Management, an Dermatol. Clin. 28 (2), W.B. Saunders Elsevier, Philadelphia (2010).

Schuhmann H. Epidermolysis bullosa. Ein update. Hautarzt 60, 614-21 (2009).

Weitere Literatur

Bruckner AL, Bedocs L, Keiser E., Tang J, Doernbrack C., Arbuckle A, Berman St, Kent K, Bachrach L. Correlates of low bone mass in children with generalized forms of epidermolysis bullosa. Journal of American Academy of Dermatology 65 (5): 1001-1009 (2011).

Burger-Rafael M. Bewegungstherapie bei Schmetterlingskindern. Physikalische Medizin, Salzburg (o.J.).

Fewtrell MS, Allgrove J, Gordon I, Brain C, Atherton D, Harper J, Mellerio J, Martinez AE. Bone mineralization in children with epidermolysis bullosa. British Journal of Dermatology 154: 959-962 (2006).

Fine JD et al. The classification of inherited epidermolysis bullosa (EB): Report of the Third International Consensus Meeting on Diagnosis and Classification of EB. J. Am. Acad. Dermatol. 58 (6), 931-950 (2008).

Fine JD, Johnson LB, Weiner M, Suchindran C. Gastrointestinal Complications of Inherited Epidermolysis Bullosa: Cumulative Experience of the National EB Registry. Journal of Pediatric Gastroenterology and Nutrition 46, 147-158 (2008).

Fine JD, Johnson LB, Weiner M, Suchindran C. Assessment of mobility, activities and pain in different subtypes of epidermolysis bullosa. Clinical and Experimental Dermatology 29: 122-127 (2004).

Goldschneider K. Pain management in epidermolysis bullosa. Dermatol Clin. 28 (2), 273-282 (2010).

Goldschneider K, Lucky AW, Mellerio JE, Palisson F, del Carmen Vinuela Miranda M, Azizkhan RG. Perioperative care of patients with epidermolysis bullosa: proceedings of the 5th international symposium on epidermolysis bullosa. Santiago Chile, December 4-6, 2008. Paediatr Anaesth. 20 (9), 797-804 (2010).


Has C. Bruckner-Tuderman L. Epidermolysis bullosa. Diagnostik und Therapie. Hautarzt 62, 82-90 (2011).

Haynes L. Nutritional support for children with epidermolysis bullosa. In: Fine JD, Hintner H (eds.). Life with Epidermolysis Bullosa (EB): Etiology, Diagnosis, Multidisciplinary Care and Therapy. 258-277, Springer, Wien (2009).

Knab J, Schumann H, Kaltofen H, Steinmann D. Epidermolysis bullosa - Anästhesieführung bei Kindern. Anästhesiol Intensivmed Notfallmed Schmerztherapie 45, 618-624 (2010). 

Kraemer SM Oral care and dental management for patients wieht epidermolysis bullosa. Dermatol. Clin. 28 (2), 303-309 (2010).

Laimer M, Lanschuetzer CM, Nischler E, Klausegger A, Diem A, Pohla-Gubo G, Bauer JW , Hintner H. Erbliche blasenbildende Erkrankungen. Symptome, Diagnostik und Therapie bei Epidermolysis bullosa. Hautarzt 60, 378-388 (2009).

Martinez AE, Allgrove J, Brain C. Growth and Pubertal Delay in Patients with Epidermolysis Bullosa. Dermatol. Clin. 28 (2): 357-359 (2010).

Martinez AE, Mellerio JE. Osteopenia and Osteoporosis in Epidermolysis Bullosa. Dermatol. Clin. 28 (29): 353-355 (2010).

Mellerio JE, Weiner M, Denyer JE, Pillay EI, Lucky AW, Bruckner A, Palisson F. Medical management of epidermolysis bullosa: Proceedings of the IInd International Symposium on Epidermolysis Bullosa, Santiago, Chile, 2005. Int. J. Dermatol. 46, 801-808 (2007).

Nischler E, Klausegger A, Huettner C, Pohla-Gubo G, Diem A, Bauer J, Hintner H. Diagnostic pitfalls in newborns and babies with blisters and erosions. Dermatol. Res. Pract. (2009). doi:10.1155/2009/320403.

Nischler E. Gastrointestinal complications. In: Fine JD, Hintner H (eds.). Life with Epidermolysis Bullosa Etiology, Diagnosis, Multidisciplinary Care and Therapy. Springer, Wien, 161-171 (2009).

Pope E, Lara-Corrales I, Mellerio J, Martinez A, Schultz G, Burrell R, Goodman L, Coutts P, Wagner J, Allen U, Sibbald G. A consensus approach to wound care in epidermolysis bullosa. Am. Acad. Dermatol. (2012).
d
oi: 10.1016/j.jaad.2012.01.1016.

Prinz F, Weiss H. Occupational Therapy in Epidermolysis bullosa. Springer, Wien (2013).

Sonstige Quellen

Bewegungstherapie bei Schmetterlingskindern. Burger-Rafael M. Physikalische Medizin. Salzburg (o.J.).

Basic Care Tips for Epidermolysis Bullosa (EB): A Parent's Guide. Lorraine Spaulding, edited by Anna L. Bruckner, MD: www.dermatology.stanford.eu

Dokumentierte Patientenaufklärung. proCompliance in Thieme Compliance GmbH (Hrsg.). Erlangen (o.J.). 

Epidermolysis bullosa In-depth information. Great Ormond Street Hospital for Children: http://www.gosh.nhs.uk/medical-conditions/search-for-medical-conditions/epidermolysis-bullosa/epidermolysis-bullosa-information/

http://www.orphananesthesia.eu/de/erkrankungen/fertigehandlungsempfehlungen/cat_view/61-erkrankungen/60-fertige-handlungsempfehlungen/67-epidermolysis-bullosa.html

http://www.pedsanesthesia.standord.edu/downloads/guideline-eb-2012.pdf