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    Through your donation you can help to secure the operation of the EB House Austria and support research on the way to a cure for Epidermolysis Bullosa. The EB House Austria is financed completely by DEBRA Austria, the patient organisation for Butterfly Children.

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  • ... or help individually.

    Here you can find different ways to help "Butterfly Children" - with organising events, etc. 

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Donation Account: IBAN AT22 6000 0000 9000 0041, BIC OPSKATWW, DEBRA Austria, Am Heumarkt 27/1, 1030 Vienna

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Terms of use

 

1. Scope of Agreement


1.1.
 Use of the services is offered to you by DEBRA Austria, ("DEBRA") on www.eb-handbuch.org ("Website") on your acceptance of these terms of use ("Terms"). If you have not already otherwise expressly agreed to these Terms, your use of this Website indicates your agreement. If you do not agree to these Terms, you may not use the Website.


2. Scope of services


2.1.
 DEBRA provides the users of this Website with information about Epidermolysis Bullosa and additional services which are available free of charge until revoked.


3. Disclaimer of liability


3.1.
 The Website is provided free of charge. DEBRA has prepared the content of this Website with due care. According to the vast amount of data and the existing security risks of the Internet it is not possible to entirely avoid errors, infringements by third parties or mistakes. In consideration of these circumstances, some information may not be up to date, complete or accurate. DEBRA – according to the fact that services are offered free of charge – cannot guarantee for completeness, reliability, or timeliness of the provided content. If you find an error, please report it to info(at)eb-haus.org. DEBRA will make diligent efforts to eliminate these errors as soon as possible.

3.2. DEBRA can furthermore not guarantee that the Website or the services will be uninterrupted or error-free. Temporary connection interruptions may occur. DEBRA reserves the right to do maintenance work at any time. Furthermore DEBRA reserves the right, also without notice, to discontinue, to change or expand at any time, temporarily or even permanently, any part or all of the services offered on the Website.


4. No liabilty for links


4.1.
 DEBRA does not have any influence on the content and presentation of linked internet services. The liability for such linked websites rests with the respective provider. DEBRA does not adopt the content of the linked websites them as its own. Accordingly, DEBRA is therefore not responsible for the content, the timeliness, the completeness and the accurateness of linked internet services.


5. Data protection, declaration of consent in accordance with Sec 107 TKG


5.1.
 Using your data

5.1.1 Dealing sensitively with customer data is of the greatest importance for DEBRA. The collecting, processing and use of data is based on the applicable legal requirements, especially on the Austrian Data Protection Act ("DSG") and the Austrian Telecommunication Act ("TKG").

5.1.2 DEBRA indicates that all personal data provided by the users [name, address, e-mail address, bank data], are stored and used only for information purposes on DEBRA's projects. DEBRA will not disclose personal information to third parties unless it is required by official authorities or law enforcement.

5.2. Declaration of consent

5.2.1 You explicitly agree that we can use your contact details for information purposes on DEBRA's projects and for advertising purposes within the meaning of Sec 107 TKG. You can revoke these consents at any time by sending a fax to +43 1 876 40 30-30, by calling +43 1 876 40 30 or by sending an e-mail to info(at)eb-haus.org. If you forward DEBRA's newsletter to third parties, you are obliged to meet the requirements of Sec 107 TKG and furthermore obtain the consent of the recipient prior to sending (opt-in). You are obliged to indemnify, defend and hold DEBRA harmless from and against any and all third party claims, damages, liabilities, costs and expenses (including attorneys' fees and expenses). If the consent to process personal information is revoked, DEBRA will immediately stop sending further information and/or marketing materials and delete all personal information.

5.3. Use of plugins

5.3.1 The Website may contain programmes (plugins) provided by Social Media platforms, in particular by Facebook. These will be identified by symbols (e.g. "Find us on Facebook", "Like" button).

5.3.2 DEBRA indicates that by the use of a plugin of this kind, your browser sets up a direct link to the servers of the Social Media platforms. The server of the Social Media platform will automatically receive information about your website visits. As a result these user data will be assigned to your Social Media account. If you use the Social Media plugin (e.g. by clicking the "Like" button) while you are logged in to the Social Media platform, these data will be transferred to and published on your Social Media account. If you do not wish to allow the Social Media platform to gather such data you will have to log out of your Social Media account prior to visiting our Website.

5.3.3 It is not clear to DEBRA what kind of data may be stored and processed by the Social Media platforms. For further information please contact the respective operator of the Social Media platform. If your account shall not be assigned to the Website, please log out from your Social Media account before visiting the Website.


6. Cookies and Google Analytics


6.1.
 This Website uses Google Analytics, a web analysis service of Google Inc ("Google"). Google Analytics uses so-called Cookies, text files which are stored on your computer and which allow an analysis of your use of the Website. The information generated by the Cookie about your use of this Website (including your IP address) is transferred to a server by Google in the USA and stored there.


6.2.
 Google will use this information to evaluate your use of the Website in order to render reports on the website activities for the website operators and to perform services connected to the use of the Website and the internet. If necessary Google will transfer this information to third parties, provided that this is legally prescribed or as far as third parties process these data on behalf of Google. However, in no event Google will associate your IP address with other data stored by Google.


6.3.
 DEBRA further uses temporary cookies to provide a more comfortable navigation of the Website. These cookies enable to adapt the language settings and user settings for sorting the links to your personal needs. These cookies are only valid during your visit on the Website; when you leave, they will be deleted automatically.


6.4.
 By modifying the settings of your browser, you are free to prevent installation of these or certain cookies. Please note that in such a case, the Website or individual services of the Website may be not or only partially available to you for technical reasons.


6.5.
 By using this Website you explicitly agree to the use of cookies for adapting your settings as well as to the use of Google Analytics in the before described way and for the before named purpose.


7. Copyright protection

© Copyright 2013, DEBRA Austria; All rights reserved.


7.1.
 Elements on the Website, such as text, pictures, illustrations, as well as design and structure of the Website and links, structure and contents of the database are subject to copyright protection and the protection of intellectual property. Unless DEBRA expressly agrees in writing, these elements may not be copied, sent, made available, presented, performed, modified, translated or utilised.


7.2.
 Links to our Website are welcome as long as they are external links and show complete pages including the navigation frame. It is forbidden to implement single websites in external frames as well as to provide RSS-Feeds on external websites.


8. Final provisions


8.1.
 DEBRA reserves the right to change the Terms for your future usage of the Website at any time and at its sole discretion. The most recent version of the Terms will be indicated as such and will be published on the Website under "Imprint". You are obliged to regularly look up for new amendments. Any subsequent use by you of this Website following the publication of changes to the Terms constitutes your acceptance of any such changes.


8.2.
 Any legal dispute arising from the use of the Website shall be governed exclusively by Austrian substantive law, without giving effect to any principles of conflicts of law. In case of a consumer contract, the choice of law is effective to the extent that no more stringent consumer protection law at consumer's residence is applicable.


8.3.
 All disputes directly or indirectly relating to or in connection with the use of the Website, including the question of the applicability of the terms and conditions, shall be governed exclusively by the Austrian court having jurisdiction ratione loci and ratione materiae for 1010-Vienna, Austria. This Agreement only applies to consumers as set out in the Austrian law on consumer protection if they have neither their residence nor their habitual abode in Austria and if they do not work in Austria.

The original version (German) takes precedence over the English translation.                

DISCLAIMER

The content on this Website is not intended to replace professional health advice. It is provided for general information purposes only.

eb-handbuch.org - Complementary provisions

1.     Scope of Agreement

1.1. Use of the services is offered to you by DEBRA Austria, ("DEBRA") on www.eb-handbook.org ("EB Handbook") on your acceptance of these terms of use ("Terms"). These Terms shall apply in addition to the current terms of use of DEBRA (see above). If there is any conflict between these two terms of use, the following Terms for the use of the EB Handbook shall prevail.

1.2. If you have not already otherwise expressly agreed to these Terms, your use of this EB Handbook indicates your agreement. If you do not agree to these Terms, you may not use the EB Handbook.

2.     Scope of services

2.1. DEBRA provides the users of this EB Handbook with information about Epidermolysis bullosa and additional services which are available free of charge until revoked.

2.2. The purpose of the EB Handbook is the advanced training and/or provision of information regarding Epidermolysis bullosa and related matters (like therapy, alternative-medicine methods, etc). The use of the EB Handbook cannot replace individual medical advice by doctors or other medical professionals. The content of the EB Handbook is solely provided for information and training and does not substitute medical advice, diagnosis or therapy.

2.3. The information provided by the EB Handbook is based on scientific knowledge and practical experience. General description cannot, however, be transferred to an individual case, due to the considerable variability of clinical symptoms. Some content may have a shocking effect. Therefore it is of the utmost importance to check for each individual case whether the provided information is relevant or not.

2.4. DEBRA provides the users of the EB Handbook access to topic-specific articles by external experts and other authors ("Content") until revoked ("Right of use"). This does not include the right to exploit or edit the Content (please find the detailed provisions for the Right of use in Pt 5.2ff).

2.5. Furthermore DEBRA reserves the right, also without notice, to discontinue, to change or expand at any time, temporarily or even permanently, any part or all of the services offered on the Website. DEBRA furthermore reserves the right to remove any information at its own discretion and without stating any reasons at any time.

2.6. The information provided by the EB Handbook will be updated periodically. It may happen that new discoveries are made inbetween updates and do not yet appear in the EB Handbook. Therefore the date of the last update is always indicated. Experts are advised to double-check with recent publications to ensure that their decisions are based on the up-to-date finding.

2.7. The "Emergency Guidelines" comprise general recommendations. Every patient is to be seen as an individual case and only a doctor is able to take appropriate therapy measures.

2.8. The provided product information and recommendations constitute general information only. They are of merely advisory nature and can under no circumstances replace individual consultation by qualified professionals. Thus, DEBRA assumes no responsibility for their effects.

3.     Disclaimer of liability

3.1. The EB Handbook is provided free of charge. The Content available is provided by external experts and other authors. DEBRA has published the other information of the EB Handbook with due care. According to the vast amount of data and the existing security risks of the Internet it is not possible to entirely avoid errors, infringements by third parties or mistakes. In consideration of these circumstances, some information may not be up to date, complete or accurate. DEBRA cannot – according to the fact that services are offered free of charge – guarantee for completeness, reliability, or timeliness of the provided information. If you find an error, please report it to info@eb-haus.org. DEBRA will make diligent efforts to eliminate these errors as soon as possible.

3.2. DEBRA can furthermore not guarantee that the Website or the services will be uninterrupted or error-free. Temporary connection interruptions may occur. DEBRA reserves the right to do maintenance work at any time.

3.3. DEBRA does not have any influence on the Content of external experts and other authors. DEBRA does not adopt the Content as its own. Accordingly, DEBRA is therefore not responsible for the Content, the timeliness, the completeness and the accurateness of the Content.

3.4. If you find precarious and/or inadmissible Content, please report it to info@eb-haus.org. DEBRA will review reported content and make diligent efforts to eliminate infringing content, and to take legal action, as appropriate. 

3.5. Liability claims against DEBRA are expressly excluded, if they are based on damages occured by the use or non-use of the provided information and/or Content or by the use of flawed or incomplete information and/or Content.

4.     Data protection

4.1. Please find the data protection regulations for the use of the EB Handbook in the General Terms of use: see above.

5.     Copyright protection

© Copyright 2013, DEBRA Austria; All rights reserved

5.1. Elements within the EB Handbook, such as text, pictures, illustrations, as well as design and structure of the EB Handbook are subject to copyright protection and the protection of intellectual property. Unless DEBRA expressly agrees in writing, these elements may not be copied, sent, made available, presented, performed, modified, translated or utilised.

5.2. The Right of use of the EB Handbook as (provided) outlined in Pt 2.4 is limited to private use. Private users are allowed to reproduce the content or parts by electronic or printed copies. This permission is strictly limited to the personal, private and not-collective use of the information. Moreover, any commercial use of the EB Handbook or parts thereof, Content and data is prohibited.

5.3. The use of extensive extracts of the provided data and information for other information systems is prohibited, unless DEBRA explicitly consents to this use in writing.

6.     Final provisions

6.1. DEBRA reserves the right to change the Terms for future usage at any time and at its sole discretion. The most recent version of the Terms will be indicated as such and published on the EB Handbook under "Imprint". You are obliged to regularly look up for new amendments. Any subsequent use by you of this EB Handbook following the publication of changes to the Terms constitutes your acceptance of any such changes.

6.2. Any legal dispute arising from the use of the Website shall be governed exclusively by Austrian substantive law, without giving effect to any principles of conflicts of law. In case of a consumer contract, the choice of law is effective to the extent that no more stringent consumer protection law at consumer's residence is applicable.

6.3. All disputes directly or indirectly relating to or in connection with the use of the EB Handbook, including the question of the applicability of the terms and conditions, shall be governed exclusively by the Austrian court having jurisdiction ratione loci and ratione materiae for 1010  - Vienna, Austria. This Agreement only applies to consumers as set out in the Austrian law on consumer protection if they have neither their residence nor their habitual abode in Austria and if they do not work in Austria.

6.4. DEBRA does not accept any liability caused by translation errors.

The original version (German) takes precedence over the English translation.