• Donate now...

    Through your donation you can help to secure the operation of the EB House Austria and support research on the way to a cure for Epidermolysis Bullosa. The EB House Austria is financed completely by DEBRA Austria, the patient organisation for Butterfly Children.

    Donate here

  • ... or help individually.

    Here you can find different ways to help "Butterfly Children" - with organising events, etc. 

    See how you can help

     

     

Donation Account: IBAN AT22 6000 0000 9000 0041, BIC OPSKATWW, DEBRA Austria, Am Heumarkt 27/1, 1030 Vienna

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Imprint

Disclosure statement in accordance with Sec 25 Austrian Media Act (MedienG) and information statement in accordance with Sec 5 Austrian E-Commerce Act (ECG)

Owner/Editor

DEBRA Austria

Registration number

DEBRA Austria, Hilfe bei Epidermolysis bullosa is a registered charity: ZVR 412404499

Seat

EB-Haus Austira
Muellner Hauptstrasse 48
5020 Salzburg, Austria
info(at)eb-haus.org
www.eb-handbuch.org

Registered Office/Address

Am Heumarkt 27/1
1030 Vienna, Austria
T +43 1 876 40 30
F +43 1 876 40 30 - 30
office(at)debra-austria.org
www.debra-austria.org

Competent supervisory authority

Landespolizeidirektion Salzburg, sicherheits- und verwaltungspolitische Angelegenheiten (SVA).
Please find here the Austrian Association Act 2002 and the website of the Landespolizeidirektion Salzburg.

Purpose of the associations

Both association are not for profit and pursue exclusively and directly (i) the purpose of promoting the well-being of people living with Epidermolysis Bullosa (EB) and (ii) the purpose of promoting the scientific research and doctrine of Epidermolysis Bullosa in order to ease or heal this disease.

Basic intention of this medium

Presentation and promotion of EB-Clinet, as well as information regarding Epidermolysis Bullosa, DEBRA Austria, DEBRA International, EB-related research and donations.

Representation in accordance with the bylaws of the associations

The President shall represent the association. Written documents of the association have to be signed by the President and by the Secretary in order to be effective. However, if financial matters are concerned (dispositions regarding assets) the signature of the President and of the Treasurer is required. In the event that the President, the Secretary, or the Treasurer are prevented, they shall be represented by their deputies.

 

Executive committee  (* only for DEBRA Austria)
PresidentDr. Rainer Riedl
President deputyFranz Feichtlbauer
SecretaryDr. Gabriela Pohla-Gubo
Secretary deputyMag. Gabriele Gößnitzer-Gharabaghi
TreasurerDagmar Libiseller
Treasurer deputyMaria Allmeier
*Supporter of the concernedMag. Ianina Ilitcheva
*Deputy of DEBRA SüdtirolIsolde Mayr Faccin

Last update: November 2013