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    Through your donation you can help to secure the operation of the EB House Austria and support research on the way to a cure for Epidermolysis Bullosa. The EB House Austria is financed completely by DEBRA Austria, the patient organisation for Butterfly Children.

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    Here you can find different ways to help "Butterfly Children" - with organising events, etc. 

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Donation Account: IBAN AT22 6000 0000 9000 0041, BIC OPSKATWW, DEBRA Austria, Am Heumarkt 27/1, 1030 Vienna

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Epidermolysis bullosa simplex (EBS)

Epidermolysis bullosa simplex (EBS) is an umbrella term for all forms of EB, where the blister formation develops within the outermost skin layer. The term "simplex" sometimes makes one tempted to believe that it is "simple" that it refers to uncomplicated and simple forms of EB. That's not quite right. It is true that some forms of EB compared with other forms of EB simplex seem less severe, it means a life can have limitations that can be different or perceived as stressful. There are also some forms of EB simplex, which are very rare, and have very serious effects on the lives and well being among the people affected. It is therefore very important to know the exact diagnosis when EBS is suspected, if you want to adapt to the fucutre course of the disease.  

Important points in a nutshell
  • Epidermolysis bullosa simplex (EBS) is the general term for all forms of EB, where blistering takes place within the outer skin/epidermis.
  • EBS is caused by mutations in different genes.
  • "Simplex" is not synonymous with "simple".