• Donate now...

    Through your donation you can help to secure the operation of the EB House Austria and support research on the way to a cure for Epidermolysis Bullosa. The EB House Austria is financed completely by DEBRA Austria, the patient organisation for Butterfly Children.

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  • ... or help individually.

    Here you can find different ways to help "Butterfly Children" - with organising events, etc. 

    See how you can help

     

     

Donation Account: IBAN AT22 6000 0000 9000 0041, BIC OPSKATWW, DEBRA Austria, Am Heumarkt 27/1, 1030 Vienna

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Books

Here you will find a collection of recommended books.

  • Books for parents
  • Books for children

Order note: "Life with EB"

EB Book: Fine JD, Hintner H (eds.): "Life with Epidermolysis bullosa (EB)". Etiology, Diagnosis, Multidisciplinary Care and Therapy. Springer, Wien, New York (2009).
A textbook from experts. ISBN 978-3-211-79270-4 Order form

Order note: "Occupational Therapy in Epidermolysis bullosa"

The book "Occupational Therapy in Epidermolysis bullosa" deals with early childhood motor and perceptual development, a particular challenge for children with extremely fragile skin. Going into functional treatment, it addresses rehabilitation of hands and feed in EB patients with fusions or contractures. Due to its practical approach, this book not only serves as a unique guide for doctors and health care professionals but is also comprehensible and useful for patients.  Springer, Wien, New York (2013). ISBN 978-3-7091-1138-3 Order form